Ok I have Lukes full diagnoses! he has psuedobstrution-which means that there isn't really a obstruction but he present like he has one. malabosption which means he can't absorb any nutrients , poor motility means he can't move or digest anything through his intestines and failure to thrieve plus neurogenic bladder his bladder is as big as a 8 yr olds bladder. He has a colostomy and a ileostomy and broviac line thats feeds him all his nutrients.
He has all these stuff wrong with him...and he is probably the happiest baby I have ever seen!!
Little update on Breonna she had her MRI...And the mass is still there but it hasnt grew so thats a good thing...that means its not a tumor!!! There is still fluid around her brain but thats why there is a whole in her skull to drain it off...and thats still opened and still working good!! So thats all good news for Onna!
Friday, October 23, 2009
Saturday, October 10, 2009
Just a little update on Luke..He had a drs appointment the other day...And the drs told my sister and brother in law that they think that his problem in neurological! They think his brain isnt telling his intestines to work..But they are going to wait to determine anything intill sees the dr in Boston! Plus they are going to take him off the IV because that fats and vitamin's they are feeding him can destory his liver...and they said the survival rate for intestinal transplant is good..but the survival rate of a liver and intestinal isnt so good...but they arent going to do anything until they get back from Boston...Lets hope that this dr in Boston is as good as they are telling my sister and bro inlaw!!!
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