Ok I have Lukes full diagnoses! he has psuedobstrution-which means that there isn't really a obstruction but he present like he has one. malabosption which means he can't absorb any nutrients , poor motility means he can't move or digest anything through his intestines and failure to thrieve plus neurogenic bladder his bladder is as big as a 8 yr olds bladder. He has a colostomy and a ileostomy and broviac line thats feeds him all his nutrients.

He has all these stuff wrong with him...and he is probably the happiest baby I have ever seen!!

Little update on Breonna she had her MRI...And the mass is still there but it hasnt grew so thats a good thing...that means its not a tumor!!! There is still fluid around her brain but thats why there is a whole in her skull to drain it off...and thats still opened and still working good!! So thats all good news for Onna!